Sunday, September 29, 2019

Since I have been back

hand made (not by me) little Bo-peep costume complete with bloomers and shepherd's crook

fancy chocolates shaped like shells from San Francisco

an eagle one morning on my bike ride

fancy chicken to add to my collection

hibiscus doing fine. Lots of pretty sunsets and sunrises here

fancy dahlias

Josh and his girls

Hannah

allie

yours truly

A childhood friend stopped by from South Carolina while on her honeymoon. She brought her dog, whom Maya loved

Miss Bo Peep
All the kids are back in school. Maya could not get afterschool care as the demand was too high so Naomi works less during the week and more on the weekends and I have to pick up Maya sometimes.
Shanna's kids are in 3 different schools, one of which takes two buses to get there. After a month of reduced activity due to the surgery, a cold and travel, I have been trying to get back to where I was running remaining a challenge. I am so slow now, much slower than 2 months ago but I hope to see some improvement as the weather cools. I do bike a lot and do my full weight routine. I am too afraid to weigh myself.

I am having trouble getting things done though on the surface, what do I really need to do? Vegetables from my garden have been thrown away as I can't find time to fix them all. I spend too much time teaching myself German which in just 2 weeks, our still unplanned trip will take place that I am learning it for. I have been seeing friends or visited by them. Many of our evergreens have some sort of disease in which we are being pressured by the homeowner's association (hate them!!) to fix. It will be done for lots of money early November.

Still haven't received any bills yet from the hospital although the insurance company said they are not paying some of the bills sent to them because the hospital won't code things correctly. When I called the hospital I was told not to worry because they are still working it out.

Even though it is late in the season, we have one lone female hummingbird.

I went to a winery with a friend once I came back..not quite the same as Napa Valley but still fun.

Tuesday, September 24, 2019

Remembering Debbie

She prided herself on her food and her decor

Debbie at our cooking class a few years ago

I met Debbie  about 6 years ago at my monthly cooking class at the Cancer Support Community. Basically the class teaches you how to eat to prevent cancer: lots of vegetables, the more colorful the better, little dairy or meat of fat, alternative protein sources to meat. The teacher, also a cancer survivor, is a nutritionist at the nearby hospital usually features 3-4 items which we all get to eat. Very few items do I ever refuse to eat, usually beets and asparagus. Fortunately she rarely uses hardboiled eggs or potatoes, which I also avoid. Debbie had breast cancer a few years after I did and  was treated with the same chemo. Unfortunately this chemo can cause additional cancers later (and heart damage, nerve damage). She was going to Italy a bit before Steve and I were so we talked about our trips and shared notes afterwards. At the same time, we needed a lot of help fixing up our old house to sell and she said we could hire her boyfriend which we did. She also liked shopping at resale places too so we did that together. About four years ago, she was diagnosed with leukemia which was thought to be due to her cancer treatment. The only cure would be a stem cell transplant. Her only sibling fortunately was a match (only happens 25% of the time: much less of a chance with children or parents). Before they would do that, she had to have chemo to knock out her blast cells (immature red cells that are useless for carrying oxygen) and have numerous transfusions. I took her to some of these chemos. Fortunately that worked well enough to be hospitalized and be exposed to high does of chemo that completely destroyed her bone marrow (and every fast growing cell like stomach linings, inside of cheeks, etc). Her brother was given a stimulant to make more stem cells (the same one I took to encourage new white cells when I did chemo) and hooked up to some sort of cell separator to harvest some of his stem cells. He produced a lot even though he was the upper limit for donating. It only took a few minutes to introduce his cells into her blood stream. A miracle these things can go from the blood stream into the inside of bones and start reproducing themselves. After a month or so, his immune system and blood producing cells had taken over her body. Until that happened, she was severely immunocompromised and had to be in strict isolation. She did text me often. Although there are 10 factors they check for for matching and her brother was 10 for 10, there must be some factors that have not been identified. His immune sytem, now in her, was attacked her body in a whole variety of unpleasant ways. They could give drugs to suppress the immune system but unless they balanced that carefully, she was vulnerable to infections. Worse, the immunosuppressants have very nasty side effects such as avascular necrosis meaning her hip joints had no blood supply and died causing immense pain. And her lungs became so damaged she could never breath well enough to be under anesthesia for the needed hip replacements. She was often hospitalized for a variety of infections. Once for 6 weeks as the graft versus host disease destroyed her whole digestive system so it had to be on complete rest. Could not even have liquids. Still in the four years she dealt with this, she would have periods of being almost normal and she could do the things she loved. Around 4 years after her diagnosis, they had xrayed her heart and lungs while she was in the hospital yet again having difficulty breathing. A new tumor of some sort was strangling her aorta. They had some xrays of just a month previous in which this monster was not there. It appeared to be lymphoma but she could not be biopsied. She had enough. Perhaps it could have been treated (rituxanin) and maybe she could have lived longer but would still have her lung issues and joint issues She was put on hospice and told maybe she had 6 weeks of life. She did not seem depressed by this news. She had been more upset at other event in her life, some quite trivial. She proceeded to entertain friends in her loft. She would have bursts of energy and even cut my hair again. In the end, she lived about 14 weeks. I was gone when she died. She had called me a few days before and was very weak.

She had called me almost every day for the past 4 years and was a big part of my life. I will miss her. What helped her get through this all was her faith that she would go to heaven. She planned her funeral on every detail selecting the Bible readings and the hymns and afterwards the menu at the luncheon. I was given a pair of shiny heart earrings I was to wear at her funeral to denote I was in her special circle (of five; of ten? numbers kept changing) I hadn't wore earrings in years so I had to repuncture them to get them in. They will remain there for awhile. So far no infection.

Her funeral was in the Catholic church my grandfather remarried in when I was 9 (he was not a Catholic but his wife was) I had not been in there since then. One of the Bible verses was that one in Matthew about Jesus, Our Shepherd, separating the sheep from the goats, as shepherds allegedly do. (parables like this would get me in trouble in Sunday school because I would question details like why are goats bad and sheep good when they are very similar to me). Anyway: sheep(aka the Righteous) are on the right; goats on the left (again, why is the left always 'bad') Time to decide who gets to go to heaven or who gets to be eternally damned. To the sheep: for when I was hungry, and you gave me food to eat. I was thirsty and you gave me drink. I was a stranger and you took me in. I was naked and you clothed me. I was sick and you visited me. Then the righteous will answer him saying Lord when did we see you need all this...And the King will answer them, most certainly I tell you because you did it to one of the least of my brothers, you did it to me.
And he pretty much says the same things to the goats only putting in the word NOT in each sentence and of course they are damned because they routinely turned their backs on people in need.

That week Trump was asked because he is such a 'good Christian" he must have a favorite Bible verse. Oh there are just so many good ones, excellent ones. How about one, just one?
Then he shut that down with that's a personal question.

How would his treatment of Central American immigrants decide which hand he should be at?
Can't he cite one Bible verse? 

If only so called Christians would really be Christians.

I had put on Facebook how I would miss Debbie as we were very good friends. Someone wrote that  our days on earth are so agonizingly long until we can be reunited with our loved ones.

Well actually my days on earth seem to go by disturbingly and increasingly fast. And as much as I care for Debbie and others that have died, I'm in no rush to die to possibly see them again especially because I really don't believe I will. But I would never deny someone that comfort.

Sunday, September 22, 2019

Painted Ladies and Hidden steps

we walked up the Devil's slide The bump on the hill was a bunker to watch for Japanese

Hidden steps


If you climb all the steps, you are at Grandview Park

Alamo Square surrounded by Painted ladies

A painted lady

more

interesting church next to Japantown

dinner on the sidewalk in Hayes Valley

the Bar on the left is where we watched the Michigan game until we had to go to the airport

this long greenspace used to have an elevated freeway over it that collapsed in one of many earthquakes. Neighborhood is now trendy versus freeway slums

lots of murals

and interesting fixtures

even a pretty trashcan

I've been back 3 weeks now. Time to wrap this up. On our last day we walked up what used to be the Pacific Coast Highway before they put it through a mountain through an area of clashing plates called the Devil's slide. They had built a railroad there four times only to have it buried in rock. Same with the road. Dangerous to go on with its sharp curves and drop offs in the fog but during the day, it now is a nice park with great views. Then onto the city to see stuff we could not get to by foot: the Hidden Steps, Alamo square. We ate at a nice Italian restaurant in a reclaimed neighborhood Hayes Valley full of cute boutiques, outdoor spaces, French bakeries, and restaurants of every ethnicity. Naomi's fancy pizza had squash blossoms on it. Then to a bar to watch Michigan struggle against an 'easy ' team before catching a redeye. Maybe I slept for the first hour or two but was up for the rest of the night. Naomi slept which was good as she had to go directly to work. I just walked around like a zombie the next day.

Thursday, September 19, 2019

Wine country





































All of the above photos are mainly in Napa although the Cornerstone Gardens are in Sonoma and the sunset is near my brother's at Montera Beach
A few months ago, I watched a chick flick Wine County about five longtime friends getting together in Napa while celebrating their fiftieth birthdays and resolving long time issues. It was rather silly but the scenery was very nice.  One subplot which I found especially irritating was one woman (age 50!) was tested for the BRCA gene (why, didn't say) but refused to find out the result because having the BRCA gene meant CERTAIN DEATH which was not challenged. Was she going to make the phone call to see if she would live or not? Will she, won't she? Who cares? Spoiler alert..she called and she didn't have the gene so now she can live!!!! So, so stupid and full of misinformation.

Naomi said she  wanted to go to Napa. All she has heard is that it is pretty. She is not a wine drinker. Sonoma Valley with its 240 wineries and Napa with its 350 wineries are next to each other. One can make a big loop. Napa is the much more upscale valley and tastings are ridiculously expensive, sometimes $50 versus $5 which I had a local winery upon my return to Michigan. Steve and I had gone mainly to Sonoma 6 years ago. Tastings were included in our hotel package. As he didn't drink, more wine for me (he drove though).  However beautiful buildings, art and gardens abound..which ones to go to? Naomi and I furiously typed into various search engines though we went to two places that I had remembered.

Although it was a weekday, some used it as part of the Labor Day weekend so plenty of crowds. Beautiful weather. We had lunch in the town of Napa, which is very cute and artsy. On to the Napa wineries which for the most part either looked like French chateaux or Tuscan Villas though there were a few outliers (German castle, space station, Greek Island...). But the gardens were beautiful. Some had animals. Some had elaborate topiaries like the wine bottles featured above. We never stopped for wine though in the mountain town of Calistoga a new brewery was about to open in a few hours. As they were not officially open, they gave me free tastes though the first pour was full of sediment from the just opened tap. A new clean pour was provided.

I did stop for a Happy Hour fancy drink (Calistoga fizz?)in a bar Steve and I had gone to years before along with some fancy appetizers. The wineries close down their tasting rooms by 5 but we still could walk on some of their grounds. We walked around the city of Sonoma where Steve and I had stayed. A French bakery had just closed but the owner didn't want to throw away the bread. Two huge loaves for us.

I was hoping to go across the Golden Gate at sunset when it would be lit up. Alas we were there too early. But we did stop for sunset pictures close to my brother's

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