Thursday, November 26, 2009

Thanksgiving


After dinner today. Pictured-Dontae, Naomi, Julia, Josh, Me and Steve

So much to be thankful for this year. Aside from my family and friends, I am alive and recovering.

I woke up early to make the pecan pie and stuffing. Later I made the green bean casserole and gravy. My guest provided the relish, pumpkin pie, and pear salad. Julia brought a sweet potato casserole. So much is left over.

While the turkey roasted, I did a run in the cold rain. I should have worn a hat, especially one with a visor as the raindrops on my glasses made seeing difficult but I was comfortable.

We will be having turkey here for the next several days.
Happy Thanksgiving to you in blogsphere!

Wednesday, November 25, 2009

Having your cake and eating it too.

Back in the lab while performing tasks that didn't require much thought, my lab mates and I would amuse ourselves by conversing in silly idiomatic sayings. Our favorite was I'm going to fix your wagon! meaning we are going to throw a wrench in the works. The former is confusing as fix does not mean 'repair', the common usage here but the opposite. More like 'fixing' races. Another we invented for the lab itself was 'loaves and fishes' (from the Miracle at Cana) In our lab vernacular, it meant we got over 100% yield for our reaction. Usually this meant our stuff was wet.

But the dumbest is: You can't have your cake and eat it too!

Then what is the point of having cake if you can't eat it.

A good portion of Naomi's disability was the inability to make inferences. (Recently the school psychologist tested her and ruled that she has no disability that would qualify her for accomdations though did suggest she might have ADD) Part of her 'treatment' was meeting with the speech therapist (though she had no fluency or enuciation disorders) going over 'idioms'. A sample:

What does it mean when you say'People in glass houses shouldn't throw stones' ?
Ummmm..they shouldn't dress in front of the windows?

Recently Oliver was tested for possible language delays. To see how well he understood 'receptive language', he was asked to put a book on his mom's foot. He just handed it to her instead

New record for running without stopping: 65 minutes vs 1 minute last March. Woo-hoo! In the drizzle no less.

Tuesday, November 24, 2009

What bothered me the most..

Right before my minivacation, I went to a breast cancer support group. Another woman and I were comparing notes about our baldness experience. The moderator stepped in and asked if I found baldness to be the most distressing aspect of cancerfest. What?!?!! If that were true, baldness could have been easily avoided by not allowing the red devil in my veins. How about the fear of early death being the most distressing? No I didn't enjoy being bald, not a good look for me. The day that handfuls of hair came out from my burning scalp was not a happy day.

I must have been voted most likely to contradict that day. Another woman was going through the thought processes she went through to choose a particular treatment and how she doesn't regret her decision for a second. The moderator said something about how noone regrets the choices they made for themselves.
NOT TRUE. I made the decision about the lumpectomy vs mastectomy without knowing the full extent of my disease. They can repeat all they want how survival is absolutely the same for either but I don't believe it. Either the research is based on a small sample or that it is full of bias they couldn't correct (the mastectomy patients tending to have more advanced cancers for example).

On my busy schedule for today, a dentist trip. I had run 37 miles in the past week. I rested my weary legs by working out in the Y.

Monday, November 23, 2009

Breast issues

Recently there was a research report about after surgery/radiation breast pain. Apparently even up to 2 years after treatment, 47% of women report persistant breast pain; half of these report it as severe. Apparently surgery and/or radiation inflames the nerve resulting in neuropathic pain. NSAIDs are ineffective against this type of pain. I still have pain too but I would rate it a one on a scale of zero to ten. It concerns me mainly because in my mind, breast pain could mean the return of cancer along with the lumpiness and hardness I feel. But apparently, this is the new 'normal' for me-hard, lumps in a painful breast as I was just checked out and found to be 'cancer-free' at least in my breasts.

One of the 'myths' of cancer is that if you have a lesion that is painful, it is not cancer. From what I read on boards, it seems that at least half of women report that their tumor was painful.

And the big issue of last week: the recommended stopping of screening for breast cancer in women 40-50 as there are too many false positives. Since this came out, the major insurers have all promised to keep paying for mammograms for this age group but we'll see how long they will keep that up. 1.6% of women in this age group develop breast cancer (source Merck Manual).Unfortunately, it is more likely to be the more aggressive, non-hormone dependent type that could kill if not stopped early. Once a woman reaches menopause, her breast cancer is more likely to be the slow growing, estrogen dependent type that one might get a way with screening for every 2 years (I am the exception to this-a mammogram found my aggressive non-hormone dependent cancer relatively early and probably saved my life). I read many blogs and most of these ladies are much younger than myself; it isn't just an old lady's disease. These are women who are still raising their children. It is true that many of these women discovered their lumps themselves but in some cases, it was by mammogram. I guess it all boils down to how much a life is worth. What is needed is a develpment of a marker that is more reliable and cheaper than mammograms such as the breast aspirate that Susan Love's crew is working on.


I posted more pictures on my blogs for the past week now that I have more time to be on the computer.

Sunday, November 22, 2009

Back home


Our last night with the boys though they will be in Michigan in a month


Such big blue eyes!!



So there is at least one person on this earth with bigger feet than mine.


Steve and downtown Boston

On our last day in Boston, Steve and I headed downtown. It was so warm, we didn't need a coat and the rain had finally stopped. We went to the touristy Fanueil Hall and Quincy Market to get some "lobstah' bisque at the Chowda House and then on to the North End to pick up some Italian goodies such as limoncello, a lobster tail for Shanna (a large sfogliatelle), rainbow cookies and macaroons. Late in the afternoon, I went for my last Boston run. It was very windy. Fortunately my path is U shaped so I'm not headed one direction for that long but on the way back, there was a 1.5 mile stretch in which I directly faced the head wind. For extra fun, the low setting sun was directly in my eyes so it was tough going on my tired legs. I had run 20 miles in the 3 days I had been there. It is strange seeing the sun set at 4 pm. Of course we in Michigan are on the western edge of the Eastern time zone and used to later sunsets.

Later that night, Steve and I watched the boys so Ramy and Shanna could have some rare alone time. Fortunately Oliver was in bed already but Daniel was up and wanted to eat. He was very annoyed to find a bottle instead of his mother and complained vigorously. He was placated by Steve walking and rocking him until his parents came home.

All week I had been having bad dreams about Naomi's life going down the drain. She is my number one worry.. (Cancer is high on the list but she gets top billing) We drove back in one day so I could help her today but as of 2 pm, no Naomi to be found.
Update: Her highness did come over later for our weekly tutoring session. Things didn't fall apart as much as I feared. I missed my son (and his wife and dog) who visited while I was out on my run. Oh well, they'll be here for Thanksgiving. Last year, Julia fixed it as I was 'in treatment'.

It's roughly 760 miles back. Fortunately we had good weather and made good time. We have 2 border crossings to deal with. Outside of Buffalo, they had a sign giving the delay at the various border crossings. Of course the one on our planned route had the longest delay so we went for the Rainbow Bridge instead. So we could see the Falls as we waited our turn on the bridge. Fortunately the delay wasn't too bad and off we went. Coming back in the US took even less time.

Friday, November 20, 2009

Boston



Oliver running 'around'

Rain, rain go away. I will have to wait until late afternoon for a dry run. I ran to Castle Island yesterday. It's very nice along the water. We took the kids to the playground yesterday to burn off Oliver's considerable energy. Today we will go to the North End, not all that far from the South End which is close to where Shanna lives. The North End is where the Italians and their restaurants are. Yum.

Thursday, November 19, 2009

Hooter Hider




Daniel smiling
They have lots of new toys and equipment for babies now. Shanna has a 'hooter hider' (from bebe au lait), an apron like device so one can nurse discreetly in public. Also new, is the concept of 'tummy time'. When my kids were babies, we were told to have them sleep on their tummies. Now this has been reversed as studies show sleeping on the back prevents SIDS. To build up their arm muscles, babies need supervised tummy time. But these babies hate it though once they can roll over, it isn't needed.

I watched the speech therapist today try to trick Oliver into speaking. He has been able to get what he has wanted through a series of grunts and signs. He is capable of speaking but finds it not necessary.

It is nice to be able to run along the water for miles.

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